All The Wiser
8. Kristen Gray has a score to settle with Batten Disease
- Author: Vários
- Narrator: Vários
- Publisher: Podcast
- Duration: 0:43:53
- More information
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Synopsis
Kristen Gray left her job to be a stay at home mom with her two young girls. In 2015, Charlotte (4) and Gwenyth (2) were diagnosed with Batten disease: a fatal disorder that would leave them blind and unable to walk, play or speak. Kristen and her husband were unwilling to accept this fate. With a breathtaking swell of love and support, they raised millions of dollars to fund the first clinical trial and real hope for a cure. Her story is a testament to the power of love (and not taking no for an answer.) In Today’s Episode: A mother’s intuition and stopping at nothing for answers (3:37) The day her 4 year old daughter, Gwenyth, receives the fatal diagnosis (12:23) The call that her youngest daughter, Charlotte, shares the same diagnosis (15:26) A family In search of life saving treatments and hope (31:03) Charlotte and Gwen’s results after the first ever clinical trial (32:17) A mom on a mission builds a school for her daughter and other families as they search for some sense of normalcy and moments of j