Hell On Wheels

Welcome to the first episode of my new informal, unstructured mini-podcast. ....jumping right in with those super simple, lowkey topics like chronic illness, death, the process of dying, and challenging the idea of "going with grace". While a hard topic, I do I hope the second half of this leaves you feeling encouraged, moved and enlightened to life your life in more a meaningful way.Since initial upload, Claire Wineland, who I mention heavily in this, passed away. It rocked my world. So, I added this very important note:IMPORTANT UPDATE: It's taken me awhile to make this update bc the loss of Claire Wineland -- the very person who encouraged me to start making digital media again, and someone I adored since she became a teenager -- hit me really hard. I considered removing this podcast bc it mentioned her so heavily, and is specifically about death and dying, which I thought may seem like it's in bad taste. But, Claire was an honest, healthy death advocate. She encouraged these conversations, she faced them,

This is a big topic, divided in two parts. First, my journey with and relationship with pain - both physical and mental - and then all the ways I have learned to cope with being in daily, unrelenting pain. This is a particularly difficult challenge when your physical and mental pain as a complex trauma survivor are equally matched. Balancing the intersections of these two kinds of suffering is such a delicate act, and is really hard to do. Despite never having a break from either, I am still figuring it out. But, hopefully something I share here speaks to you, allows you to relate, or even gives you ideas on how to face your own battles. It may also leave those with disabled or mentally struggling loved ones with more compassion toward their suffering and daily fight for wellness.✧ Twitter: https://www.twitter.com/rollwthepunches✧ Quick Disability FAQ:-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrom

Inspired by Wheels No Heels (Gem Hubbard), I wanted to share my experiences with the wild things people say to wheelchair-users and the insensitive conversations that we find ourselves in all the time. ....complete with entertaining anecdotes and ludicrous scenarios that I honestly hope supplies some comedy and levity to your day. This was recorded during a brutal, emotional week coping with the children at the border, so I wanted to go back to focus on when I recorded this and brought some lightness into the week, despite a frustrating subject matter. I hope it helps!✧ Twitter: https://www.twitter.com/rollwthepunches✧ Quick Disability FAQ:-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrome) / MCAS (Mast Cell Activation Syndrome)-I also have Erythromelalgia (aka "Man on Fire").-Wheelchair user-I also have many mental health complications from severe childhood trauma, but will mostly focus on medical d

*deep breath* I wanted to tackle my thoughts and feelings on the "opioid crisis". Only, I wanted to tackle it from every side. I know both extremes well depending on where I spend my time, but I'm someone who's experienced them all — chronic pain, being denied care, personal addiction, and losing best friends to their own opiate addictions and/or pill abuse. Opiates aren't good OR bad, they're good AND bad, and we need to more thoughtfully explore these conversations. Because, the people on both sides are just in pain — deep, excruciating pain. There is no easy solution, though I tried to supply as many as I could think of in the end.✧ Twitter: https://www.twitter.com/rollwthepunches✧ Quick Disability FAQ:-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrome) / MCAS (Mast Cell Activation Syndrome)-I also have Erythromelalgia (aka "Man on Fire").-Wheelchair user-I also have many mental health complicatio

I decided to take the deep plunge into the many, many things that are difficult about being a medical and/or mental health advocate online. There are so many brilliant, incredible things that come alongside this work, but sometimes we need to level and be real about the junk that comes along with it, too. Some of it is mere nuisance, but there is a lot that is incredibly damaging. We need to be real about this.Timestamps for easier listening below!!✧ Twitter: https://www.twitter.com/rollwthepunches✧ Quick Disability FAQ-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrome) / MCAS (Mast Cell Activation Syndrome)-I also have Erythromelalgia (aka "Man on Fire").-Wheelchair user-I also have many mental health complications from severe childhood trauma, but will mostly focus on medical disability here.✮✮✮I'm Kaalyn, chronic illness warrior, wheelchair bamf and certified hellion for the greater good. Fueled b

After tackling the "opioid crisis" in earlier podcasts and why so many find themselves trying or using hard drugs, I decided to take on the aspects NO ONE talks about. What is it about using hard drugs that keep users stuck or constantly coming back -- things that have NOTHING to do with the drug itself. Controversial at best, I still wish more would talk about this, including therapists with their clients. It's how we understand ourselves and become well.✧ Twitter: https://www.twitter.com/rollwthepunches✧ Quick Disability FAQ:-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrome) / MCAS (Mast Cell Activation Syndrome) -I also have Erythromelalgia (aka "Man on Fire"). -Wheelchair user -I also have many mental health complications from severe childhood trauma, but will mostly focus on medical disability here.✮✮✮I'm Kaalyn, chronic illness warrior, wheelchair bamf and certified hellion for

I've been on hiatus following Claire Wineland's death, but little do most of you know I've been in a tough place on this topic for awhile. So, to honor her death-positive mission, and my own process, I'm pushing ahead, starting with this topic -- including the flip side of being aware of one's mortality. I have already discussed what it feels like to die - it's where we started this journey. Then I talked a fair amount about losing my best friend recently and how much death just follows me; I've lost an infinite amount of loved ones it seems. But, what does that do to me? To how I live my life? To how I approach death? Especially as someone with a chronic illness that could take me whenever? Let's dive in.✧ Twitter: https://www.twitter.com/rollwthepunches✧ Quick Disability FAQ:-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrome) / MCAS (Mast Cell Activation Syndrome)-I also have Erythromelalgia (aka "